ACCUSED: An Autism Mother – the Art Exhibition

So here it is, the exhibition is now live and official.


‘ACCUSED: AN AUTISM MOTHER’ at the Artrix Arts Centre February 2017.

Supported by Arts Council England and Worcestershire County Council

Exhibition:
ACCUSED: An Autism Mother
Bernadette Louise creates a spectacle of oversized Healthcare posters emphasising the ‘invisible’ symptoms of Autism Spectrum Disorder, Pathological Demand Avoidance. In an honest response to the Authorities who accused her of Fabricating and Inducing her Son’s ASD, she uses documentary mobile phone images and direct quotes from the assessment process to highlight a desperate need for PDA Awareness. Quickly the professionals focussed on her as Mother, instead of the Child’s symptoms they were faced with. Bernadette intends to highlight the contradictions and accusations that caused the NHS to refer to Children’s Services resulting in a Child Protection
order. Through her Art and Spoken Word event Bernadette exposes the true harm caused by the Authorities to families with ‘unseen disabilities’.

Spoken word event:
An evening of poetry and spoken word including performances by those who are on and support people on the Autism Spectrum. Featuring the popular Autism Vlogger, ‘Autistic Genius’ and visceral Artist Bernadette Louise.

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ACCUSED: Autism. The Art Exhibition about PDA

 

After a while of not posting, not being greatly social media sociable, i have decided to update on why and what’s been going down. I have had a temporary break from dealing with the NHS complaint and have been working on my art. This is good and bad. Having a break from the complaint doesn’t mean it has gone away or been at the back of my mind. Far from it. Not working on it has caused me more stress and made me have less focus on the things i need to do. I am constantly thinking about the way in which the complaint has been handled and what an abomination the whole situation was and is, and i NEED to fight them still. No matter how lacking in motivation i become, i still think about the things i should be doing. Trawling through all of the NHS and Social Services lies and defamation is traumatic, it is emotionally hard work and i would rather not be doing it. However, i cannot let them free of the burden they caused my family and will persist. Even if it is at the expense of my own health and wellbeing. They already did enough to scupper that anyway, so what’s a little more of a battering?

So in my break from the complaint, i have placed my energy on a project not too far removed from it and it is my art exhibition. The exhibition is about Autism Awareness, but not as you know it. It is a PDA awareness project, and a parental blame project. It is a tangible backlash and two fingers up at the NHS and the way in which they dismissed the very symptoms of PDA and blamed us parents for the issues. This is the reason for AWARENESS and it doesn’t stop at just reading a bit about PDA, it is about respecting parents enough to realise they are genuine and aware people themselves.

bl-accusedThe work is based on the ‘Invisible’ symptoms of PDA. It also highlights direct quotes lifted from the notes and information i have from the NHS…that in itself makes a hugely interesting read.

There it is.

ACCUSED: Autism
by Bernadette Louise

The exhibition is funded. It has backing from Arts Council England and Worcestershire County Council. And it is taking place within the very geographic region that harmed us, Redditch and Bromsgrove. The Artrix Arts Centre in February 2017. It isn’t that long away, and i am finally getting to grips with the content, but i have a lot to do and a lot to organise. I also have to be a parent and a partner, so the NHS idiots can wait a little while longer while i attempt to carry on with my life.

If anyone would like to contribute to a piece of work, i am running a public facing engagement project and would love to include your experiences too. Please do contact me if you would like to know more about that or any part of the work.

Photo by Mac James 2016.

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Dear Victoria Derbyshire Autism, PDA, NHS

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Dear Victoria Derbyshire

I wrote to you on 15th June 2016 hoping that you would be able to share my story on your programme. Things with the NHS and their malpractice have continued to worsen since i wrote to you, and the behaviours NEED exposing. Even with an expert diagnosis of Autism for my son, we are still suffering at the hands of the mis-management of our PALS complaint and finding ever concerning emails shared through my access to personal data request.

I today received an email that is horrifying to read, especially in light as being innocent of their initial accusations of Fabrication & Induced illness. as a family we have been heartbroken, by allegations and intrusions, we have been defamed in utterly unacceptable ways. We need to take action, yet having previously spoken with a solicitor, we have no way of moving forward. He stated that although it appears that the NHS and local authorities have acted wrongly, suing for defamation is a “rich man’s game” and one that we will essentially wasting our time. I am beyond frustrated and upset as they need to be held accountable. As with an new email that has come to light today we have no confidence in the NHS moving forward. I am beside myself with anger and grief and need someone to help get justice. We have suffered harassment at the hands of ‘keeping an eye on this family’, yet we have ABSOLUTELY DONE NOTHING TO WARRANT THIS…. i have attached an email for you to see, which contains information that SHOULD NOT HAVE BEEN SHARED outside the confines of the Child Protection Meeting (CPC) and also, it as lies within it which i have audio recordings to prove. I have also sent you a link to my online blog that i tried to keep for my own venting and it is very personal, but anonymous. I am aware that i come across as NOT very media friendly due to my hot-headed language, however, it i can be very articulate and the blog really is only for release. It has details on there of emails from NHS staff members, letter to MP.

Originally i omitted staff names, but i have today contacted my local newspaper and they advised me that it is ok to share names with the print evidence and if there is any defamation, the staff must be given a chance to respond. I have informed the NHS that the Media are aware of this case, and that the local paper ARE picking it up, but with the in-depth and complex nature of the harm the NHS has caused us, they are choosing which angle to pursue.

I hope that this helps you find reason to look in to my situation, as this is happening across the country to parents of autistic children particularly PDA.

Please could someone contact me to discuss further. I am in desperate need to share this and gain support to fight this injustice.
Please.

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