Mommy’s Christmas Book of things…Thanks for everything, NHS, CDT, Aryu, Parsuns, fuckwits

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I felt the need to publish this now…i started a Christmas book last year for recipes, crafts, cuttings, lists etc…I couldn’t face it. I had a list of veg to buy/make like Red Cabbage & Cinnamon carrots – but that’s as far as it got. My heart was breaking, my eyes were constantly sore and puffy and i was aching in my gut like nothing else i had ever experienced. Merry fucking christmas you bastard accusing waste of space cunts, you ruined my family’s Christmas…my partner and i saved it for the boys. I don’t know how we managed..but we did. For them. The boys you could have had put in to Local Authority care…Thanks for being so royally shit at your jobs. I keep reminding myself that i WAS RIGHT all along, in EVERYTHING that i did. I was right, and YOU, yes YOU..Aryu, Parsuns, Garbutt, NHS, were wrong! Damaging & wrong.

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24/12/15

This years christmas couldnot have been worse –
I had hopes of keeping this book as an ongoing xmas to do/ memory
Traditional list of things

NO it’s been been Been Ruined
By me
Social Services –
NHS –
Wankstains cannot do their jobs so blame Me.
Us. Putting us through this shit shit SHIT

To my family      Man, Boy, Toddle
I am so sorry. I wanted so much for this Christmas- we’ve tried to put on a brave face – I Love You. X
Next year will be better. I hope xxxx

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ACCUSED: An Autism Mother – the Art Exhibition

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So here it is, the exhibition is now live and official.

artrix-logo‘ACCUSED: AN AUTISM MOTHER’ at the Artrix Arts Centre February 2017.

Supported by Arts Council England and Worcestershire County Council

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Exhibition:
ACCUSED: An Autism Mother
Bernadette Louise creates a spectacle of oversized Healthcare posters emphasising the ‘invisible’ symptoms of Autism Spectrum Disorder, Pathological Demand Avoidance. In an honest response to the Authorities who accused her of Fabricating and Inducing her Son’s ASD, she uses documentary mobile phone images and direct quotes from the assessment process to highlight a desperate need for PDA Awareness. Quickly the professionals focussed on her as Mother, instead of the Child’s symptoms they were faced with. Bernadette intends to highlight the contradictions and accusations that caused the NHS to refer to Children’s Services resulting in a Child Protection
order. Through her Art and Spoken Word event Bernadette exposes the true harm caused by the Authorities to families with ‘unseen disabilities’.

Spoken word event:
An evening of poetry and spoken word including performances by those who are on and support people on the Autism Spectrum. Featuring the popular Autism Vlogger, ‘Autistic Genius’ and visceral Artist Bernadette Louise.

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Vic Derbyshire show brief mention of FII & Child Abuse in Fatigue feature

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THIS SHOW NEEDS TO START TAKING NOTICE OF WHAT IS GOING ON WITH PARENTS OF UNSEEN DISABILITIES

C’mon….It is about time that they responded to one of my emails and actually decided to break the silence and help families realise that they are not alone with the horrible and INCORRECT allegations of child abuse that arise from the healthcare servcies who do not see the invisible conditions. YES that person who spoke about fatigue and ME was right (post edit: Jane Colby of Tymes Trust), if something that the health professional suggests doesn’t work, (in this case it was discussing CBT with Chronic fatigue) they automatically assume that the parent has another agenda, a disgraceful and lazy accusation of Munchausen’s by Proxy. It is tearing families apart and it is not only with Fatigue as per the feature on the show just. IT IS WITH AUTISM. AND IT HAS HAPPENED TO ME, MY PARTNER AND OUR CHILDREN! No harm was found, after a hell of a time. Yet, it was gutwrenching and unfair.. and no one has apologised for being WRONG.

Please can someone pick up this story??? Much more needs to be done urgently to lift this overwhelming shadow that the NHS and Children’s Services place on innocent and incredibly caring parents.

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ACCUSED: Autism. The Art Exhibition about PDA

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After a while of not posting, not being greatly social media sociable, i have decided to update on why and what’s been going down. I have had a temporary break from dealing with the NHS complaint and have been working on my art. This is good and bad. Having a break from the complaint doesn’t mean it has gone away or been at the back of my mind. Far from it. Not working on it has caused me more stress and made me have less focus on the things i need to do. I am constantly thinking about the way in which the complaint has been handled and what an abomination the whole situation was and is, and i NEED to fight them still. No matter how lacking in motivation i become, i still think about the things i should be doing. Trawling through all of the NHS and Social Services lies and defamation is traumatic, it is emotionally hard work and i would rather not be doing it. However, i cannot let them free of the burden they caused my family and will persist. Even if it is at the expense of my own health and wellbeing. They already did enough to scupper that anyway, so what’s a little more of a battering?

So in my break from the complaint, i have placed my energy on a project not too far removed from it and it is my art exhibition. The exhibition is about Autism Awareness, but not as you know it. It is a PDA awareness project, and a parental blame project. It is a tangible backlash and two fingers up at the NHS and the way in which they dismissed the very symptoms of PDA and blamed us parents for the issues. This is the reason for AWARENESS and it doesn’t stop at just reading a bit about PDA, it is about respecting parents enough to realise they are genuine and aware people themselves.

bl-accusedThe work is based on the ‘Invisible’ symptoms of PDA. It also highlights direct quotes lifted from the notes and information i have from the NHS…that in itself makes a hugely interesting read.

There it is.

ACCUSED: Autism
by Bernadette Louise

The exhibition is funded. It has backing from Arts Council England and Worcestershire County Council. And it is taking place within the very geographic region that harmed us, Redditch and Bromsgrove. The Artrix Arts Centre in February 2017. It isn’t that long away, and i am finally getting to grips with the content, but i have a lot to do and a lot to organise. I also have to be a parent and a partner, so the NHS idiots can wait a little while longer while i attempt to carry on with my life.

If anyone would like to contribute to a piece of work, i am running a public facing engagement project and would love to include your experiences too. Please do contact me if you would like to know more about that or any part of the work.

Photo by Mac James 2016.

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So is this an admission of wrongdoing? NHS reply

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So this is just one of the comments in the recent NHS response. And yet they still insist in their letter that they are not and were not wrong to act in the way they did, and they continue parent blame throughout the report. More to come, once i’ve dealt directly with the imbeciles.

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Inept and displacement of blame continues through the heart of the ASD Assessments and Child Development Team in Worcestershire Health & Care Trust. Ha, Trust. Do not Trust them, their name is surely mis-advertising and misleading to us mere NHS punters, surely they should be done under the trades description act 😉

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Redditch Advertiser facebook page comments

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Redditch Advertiser Facebook pages has sooooooo many comments relating to our story, if anyone wants to add to them, please feel free to do so. I can’t seem to get a direct link to the facebook page & comments… But if you search it out you’ll find it on the Redditch Advertiser Facebook page.

Here is my response to the comments:

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Dear all, thank you to so many of you who have commented on this article. Yes it is the briefest of articles and no one said that it would come across as in depth as it needed to in order to expose the full extent of the malpractice that my child and us as a family underwent at the hands of the Scott Atkinson Staff, Paediatrician, Occupational Therapist and CAMHS. Many of you shared similar experiences with the same team, even pin-pointed a particular staff member that caused us the trouble after i had complained about him. Yes, it is always difficult to diagnose ASD so young, but real experts, ASD experts with experience of PDA can in fact diagnose as young as 2, my son was nearly 4. We never imagined that a diagnosis was on the cards, but we also realised after the team were not helping matters and nothing they said was working that we needed to be listened to. We never envisaged that it would have come to Social Services in order to get our boy the help and understanding he needed then and going forward. We only managed to get an assessment and susequent diagnosis of ASD PDA by the skin of our teeth Privately as the NHS had not sought out a second opinion prior to accusing me of FII. The first expert professional that came across my son was able to see that everything we had said all along was valid and our suspicions about PDA were correct. The CDT & CAMHS were not in the slightest bit interested in my thoughts regarding PDA and were very involved and focussed on me as a Mother. Not all NHS teams are as bad as the one we encountered. But it does go alot more behind the scenes that this article shows. As far as i am aware and concerned they were unable and inexperienced in PDA to diagnose it, however, they didn’t say that more time was needed to assess him, they actually totally closed his cases and said outrightly that he DID NOT have ASD including PDA. We were frustrated by this, however, never in a million years did we think they their secret opinion of me personally was so low. I am outspoken, and i challenged their small-minded view of things directly, I highlighted errors they had made and incompetence where i saw it. No one likes being told they are not doing their job properly, sure, but it doesn’t make me unhinged for saying so. I am who i am, and they took exception to me, personally. They had been accessing my personal and social webistes, such as facebook, my professional work website and they thought that this gave them reason that i might be fabricating or inducing. The team stepped way outside of their job roles and their personal and subjective opinions have been taken as medical and objective reports, which is not the case and should not be acceptable. I accessed 53 pages of emails between staff and then saw how deep this went. Please never hesitate in contacting your GP if you feel you need support for your child, but be aware that, in our experience, the assessments quickly become less about the child and more about the parent. This for me was always about getting the support for my son, yet they made it about me and not him. The PALs investigation in my case is still underway. For those of you who had/have similar experiences, PLEASE go to PALS and lodge a complaint. It is amazing how many people have contacted me with similar stories to mine and they have done nothing about it. Be aware too, that as parents to those with INVISIBLE DISABILITIES we are fighting a very different battle to those parents with children of physical medical conditions and disabilities. There is no outright test for autism, we have a lot more of a struggle to get those ‘symptoms’ recognised and if the team are stuck, they close cases and blame parents (in our case and many more i am now aware of). It should not be the accepted that the NHS we employ to help us, simply get stuck, blame parents, when do not know what they are dealing with. They didn’t seek an expert opinion and had they done, the whole Childrens’ services ordeal could have been avoided. The team did go to Children’s services when they shouldn’t which they have since put in a round about way in writing to me. “in hindsight a referral for FII, may not have been required”…their words. Please feel free to read more about this and contact me if you wish. This is the documentation website and people’s comments are welcomed. http://breakfasttree.com

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Has anyone in your family gone through a similar ordeal as Bernadette?

She was accused of causing significant…

Posted by Redditch Advertiser on Wednesday, 24 August 2016

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BBC Radio Hereford & Worcester Interview

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Dear all

Here is the BBC Hereford & Worcester Interview i did with Elliott & Toni on 25th August 2016.  This is the audio extracted from the full show.

This is my original post about it here

Best

Berni

x Bee BreakfastTree.

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Replies to comments

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Dear everyone who has left a comment,

Please be sure that i have taken the time to read your honest and heartfelt responses on here. Your stories are immense, and i will try and reply to them individually as soon as i get an opportunity. As you can imagine, life has always been hectic, but now it has gone crazy chaos with emails etc. And i am still fighting the fight.

Best wishes to you all,

Bernadette x

 

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BBC Radio Hereford & Worcester

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With the Radio interview all done, if i said anything stupid, please don’t attack me, I’m doing what i can with the time they give me. I’m still a mother at the end of the day. To those of you who want to listen to the radio covering the story this morning, i have the link here…it should work!

http://www.bbc.co.uk/programmes/p043lwml

The piece was at 8:18am, so it is 2 hours 18 minutes in to the Breakfast Show with Elliott & Toni.

Thanks everyone for all of your support, kind words mean everything to me. I am conscious that this whole thing is just my one perspective and going ‘public’ has been a difficult choice to make. Please feel free to leave your comments of your experiences, your own news, to show the continuing National nature of the story i have shared.

Best wishes

Bernadette xx

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Local Paper Coverage ASD/PDA Redditch Advertiser

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Please read the story here…

Redditch & Alcester Advertiser News Paper Story here

BL AccusedScott Atkinson Centre, Child Development Centre – Photo Credit: Mac James 2016.

Ok, so there are some errors within the text that i don’t like. I have contacted the Reporter and they have changed the online version, i suppose this highlights the need for further awareness.
Autism is a Neurodevelopmental Condition. It is a condition, a difference and not a disease. I don’t believe that my Child ‘Suffers’ with Autism either. The sensory and anxiety symptoms themselves can be hard and they can cause suffering. But i don’t let my son suffer.

PDA Society for further information – they are brilliant! pda society

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